Sunday 19 February 2012

A Radical Idea

I have had my parents visiting this weekend and we have been discussing the welfare reforms and where the jobs are going to come from. I thought I would share my idea with you.

Currently the Government are keen to get everyone out to work including parents.  Whilst I agree that everyone should have the CHOICE (note the word choice!) to work - I don't think that this is the answer to our current problems. 

I would like to see the Government increasing tax credits to allow one parent to stay at home longer.  This could still work out cheaper than paying towards our childcare costs as in the present system.  I think this should be available for either mum or dad but I appreciate it may be mainly mum's that will choose this.

By paying one parent to stay at home I think it would help on several levels.  Those parents who want to be a homemaker can do so without fear of not being able to afford it or of being harrassed into getting an interview. 

Parents would be able to take their children to and from school without using them as an unpaid babysitter

There would be nursery places available for those parents who wanted to work and less waiting time. 

There would be more jobs available as those parents currently working take advantage of this more generous parental package.

I realise that my idea is probably quite controversial and won't sit well with everyone.  I know that as women we have fought for years to have these rights to allow us to go back to work after having a baby and to have the same opportunities as men.  I don't have a problem with that and I am far from 'mother earth' or a perfect parent.

But.......since I have stopped working I think I have realised that a lot of what we were told is not true..... we can't have it all.  Maybe we can try but something loses out.  Either we don't give ourselves fully to our jobs, or we miss something of our children's like concerts, open days etc.  If we manage both of these  we are probably beating ourselves up about our house not being perfect or not having a home cooked meal every day.

When I was working I had a job I enjoyed.  I had a manager that was flexible and if I needed to take time I could.  I only worked 17 hours a week and thought I was coping great.  I wouldn't have said I had any stress.  But I woke up 2 - 3 nights a week for around an hour or two.  I  always said that I didn't need a lot of sleep and that I was like my dad (he gets up regularly).  Since stopping work in November I haven't got up through the night once!

I know a lot of people will probably disagree with me but I really believe that there should be a choice available.  Maybe it wouldn't work - maybe we have come too far and not enough parents see staying at home with their children as a valid choice.

What do you think?

Saturday 11 February 2012

Us Time

We do try to get Us Time - even if it is just in the house, having a couple of drinks together, watching tv, doing crosswords etc. 

Sometimes this is hard to do. 

Not only do we have a 19 year old with a severe and complex learning disability we also have 3 younger boys.  As you can imagine looking after our brood takes a fair bit of time.  We've no sooner tidied up than they've made a mess and we need to start all over again.  Add that to the constant washing, ironing, cooking, doing dishes etc.

Gone is the sponteniety - we need to plan more.  So we try and set aside one night a week when my partner isn't working the next day.  We try and organise a nice meal for ourselves and have a couple of drinks, play music and just spend time catching up with our news.  

This has become a bit easier since I stopped working.  There feels to be less pressure on us as I can catch up with everything while kids are at school and we get on much better as a result.  The other good thing about stopping working to look after my family is that it doesn't matter if its a late night as I don't mind getting up and once kids are at school I can always jump back into bed! lol






Specialsaturday

The idea behind this is to use Saturdays to spread awareness of the needs, feelings and accomplishments of children and adults with additional needs or autism. Members of Twitter are asked to make awareness posts on Saturdays using the tag #specialsaturday.
Bloggers are asked to write about their experiences of achievement by people who have additional needs or autism on Saturdays. Members of Facebook are asked to write status updates that help spread awareness on Saturdays. Members of both Facebook and Twitter are asked to use the Twibbon that’s designed to spread awareness of the Special Saturday can be found specialsaturday twibbon to add to your profile pictures. Please add your friends and help us spread awareness. People with additional needs have struggled for too long to be accepted as equal members of society and this MUST change.

Thursday 9 February 2012

Self Directed Support

My son is getting Self Directed Support.  Is this a good thing?  At the minute I've still not fully made my mind up whether this is a good thing or not. 


When Adam left school 2 years ago he had a place for 3 years at college on a development course and a supported (funded) voluntary postition in a cafe run by an organisation that gives training to adults with learning disabilities.  He also had one day a week at a day centre and when college was on holiday he went to the day centre an extra 3 days a week.  The funding for him to attend the day centre was around £17000 pa

He really liked the day centre.  He had the opportunity to try different activities, he was part of a walking group and they did some educational stuff like keeping yourself safe and relationships.  They could also target any learning specific to the service user if there was something in particular that needed addressing.

He also had the chance to meet girls! He is 19 and loves girls.  Being in the day centre allowed him to have a 'relationship' He had a couple of girlfriends while in there and was becoming quite the heartbreaker.

Anyway things change.  The budget cuts to education has meant that his 3 year course is now a 2 year course and finishes this year.  He has also been assessed for Self Directed Support (SDS) and has stopped attending the day centre.

First let me say we love his Social Worker.  She works very hard to maximise his opportunities and is always available, even if it is just a quick text to answer a query.  However, I don't feel that his SDS is quite right.  He currently gets support from 8.30am - 3.30pm and 6pm - 10.30pm on Friday and 12 - 5pm on a Saturday, he also gets extra support when the college is on holiday.  This support is shared with another young man that he already knows and this allows them to maximise their funding - The cost of this support is around £8,000pa

We didn't really have a choice in whether to take SDS or not. It was promoted in such a way that we didn't know we could keep things as they were or take a combination.  We also weren't given a choice of providers for the support.  It was just assumed that this is who we would use and the board approved it and paid money straight to the provider.  Some of this might be my fault as I didn't question enough, however, I didn't have much knowledge at this time and although I was given things to read none of them were from the Scottish Government and most were about the process rather than our opportunities.

Adam enjoys his support.  On a Friday they go to either the library or the gym and then to a club where the support organisation run a karaoke.  This is good  fun and everyone enjoys themselves either singing or dancing.  On the Friday evening there is a disco organised locally for adults with disablities (mainly learning disabilities).  There are around 200 people attend this from all over the west of Scotland and Adam loves it.  Beer/Girls what more does a 19 year old young man want!!

Saturdays are spent in the main ether bowling or pictures and here is my problem.  I feel that this is an easy shift for the support staff and I think it is more like befriending for a young person than support for two young adults. 

I would like the support on a saturday to give them an opportunity to try different activities or challenge what they like.  Neither of them have behavioural issues, Adam needs support to ensure that he is safe and his money is spent appropriately and his friend is non verbal.   I feel the team leader is not prepared to think outside the box to maximise their oppportunites.  Their activities cost around £30 per week on top of the cost already paid by the LA and while I don't mind paying - after all this is why he gets DLA - I would rather they did things that we can't do as a family. 

I am not sure what the answer to this is at the moment.  We have had a review where the team leader agreed to look at things but up to now nothing has changed.

We also have a small problem of when Adam finishes college.  He will have 3 extra days a week to fill and no extra money.  His social worker is currently looking at voluntary positions for him that do not have to be paid for.  However these may not materialise.  I am dreading the possibility that he may have to spend his days with me.  I love him dearly but he is a young adult and he hates spending any length of time in the house or with me.

This could also be a problem for other families where both parents work.  When your disabled child reaches 16 the Government says you should go out and find a job.  This has been the time that I have found it harder to continue working and this has culminated in me stopping working.  When your child is at school you know they are there from 9 - 3 every day.  When school finishes things are not as secure and there may be days that they are not getting picked up till 9,30 and may be dropped off at 2pm.  How are you supposed to keep working then.

I'm not sure what the answer is for Adam.  Maybe we should look at other providers but I'm not even sure if we are locked into a contact with his provider for a certain length of time.  Probably these are questions I need to be asking.